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2013 archives

Disabled baby denied heart transplant elsewhere, receives care at Boston Children’s
December 2, 2013

CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities.  The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.”  Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail , Fox News, The New York Post and Gawker.com.

Experimental surgery at Children’s Hospital gives girl life
March 26, 2013

WCVB-TV channel 5 profiled 9-year-old Boston Children's patient Alexa Rand, who was diagnosed in utero with hypoplastic left heart syndrome, a rare condition that causes a portion of the heart to under develop. Boston Children’s Frank Cecchin, MD, talks about the surgeries that saved her life and how well she is doing today. 

Yarmouth girl alive, waiting for new heart, thanks to device
March 5, 2013
The Cape Cod Times features the story of 13 year-old Kyah DeSimone, who was the first patient discharged from Boston Children’s with a ventricular assist device (VAD) and the first patient to go back to school in North America with a VAD while waiting for a heart transplant. Boston Children’s Christina VanderPluym, MD, and Beth Millian, RN, BSN, describe the team effort to get this VAD for Kyah and then train those in her community about the device. WCVB-TV Channel 5 also covers Kyah’s remarkable story.

Working to End Heart Transplant Rejection
March 5, 2013
Boston Magazine reports that Boston Children’s David Briscoe, MB, BCh, is leading the efforts to better determine the warning signs of a chronic heart transplant rejection.

Boston teen carries artificial-heart battery inside her black purse while she waits for transplant
March 4, 2013
The New York Daily News reports that doctors at Boston Children’s Hospital have treated  the first child who has been able to leave the hospital with a ventricular assist device (VAD). She carries the VAD in a small black purse, which lets her live a normal life outside of the hospital while waiting for a heart transplant.  Boston Children’s Hospital’s Christina VanderPluym, MD, is quoted. The Daily Mail also reports on this story.

Teen Takes Artificial Heart to School as She Waits for Transplant
March 1, 2013
ABCNews.com tells the story of 13-year-old Boston Children’s patient Kyah DeSimone who was diagnosed with dilated cardiomyopathy at age 10. Until a new heart is available, Kyah has a portable, motorized pump in her heart, allowing her to return to school and live a normal life while she awaits transplant.

Heart Troubles Rare But Deadly in Young Athletes
February 28, 2013
ABC.com reports though relatively rare, a cardiac event that strikes a young athlete at practice or play is often deadly. About 100 young people die every year playing organized sports, and cardiac arrest is the cause in about half the cases. Boston Children’s Dominic Abrams, MD, provides perspective on the issue and offers prevention advice.

Stranger Saves Holyoke Boy… Now Active Life, with a New Heart
February 21, 2013
WGGB (ABC affiliate, Holyoke, Mass.) tells the story of 14 year-old Ardazan Dennis, who received a heart transplant at Boston Children’s Hospital when he was 10. Ardazan was born with a rare congenital heart defect and needed a transplant to save his life.

Children’s first cardio fetal intervention patient honored at Celtic game
February 19, 2013
The Ipswich Wicked Local reports that before Boston Children’s patient Jack Miller was born, an ultrasound revealed a blockage in his heart. Boston Children’s doctors performed a novel procedure, repairing Jack’s heart, then the size of a grape, while he was still in his mother’s womb. Thanks to this first-of-its-kind care, Miller was born perfectly healthy and remains healthy 11 years later

Wakefield Girl Gets Heart Transplant In Time For Valentine’s Day
February 14, 2013
WBZ-TV channel 4 reports that five-year-old Boston Children’s patient, Katy Murphy, struggled with a heart condition since birth and received a new heart just in time for Valentine’s Day.  Boston Children’s Dr. Kevin Daly, MD, the is interviewed. WHDH-TV channel 7 also reports on the youngsters’ transplant.

Good news for heart transplant recipients
January 9, 2013
The Metro newspaper reports on new research from Boston Children’s Kevin Daly, MD, and David Briscoe, MD, who found a way to use a combination of three blood-borne proteins to possibly prevent chronic rejection of heart transplants.

Poker Pals raising money for baby’s life-saving surgery
January 3, 2013
WCVB-TV channel 5 reports on the fundraising efforts to get a 6-month-old Pakistani infant with a complex heart condition to Boston Children’s Hospital’s Cardiac Care Center. Medical experts from Pakistan and India were unable to provide the complex medical care the baby needed and contacted hospital, were Boston Children’s Sitaram Emani, MD, agreed to manage the infants care.

The future of medicine is now
January 2, 2013
The Wall Street Journal reports on six medical innovations that could change the way we fight disease,including Boston Children’s Hospital’s cardiology team’s treatment for hypoplastic left heart syndrome. Boston Children’s Sitaram Emani, MD, is interviewed.

2012 archives

E'town teen undergoes heart transplant
March 1, 2012
The Press Republican
Boston Children’s patient Connor Marvin is featured.

North Country teen recovering from lifesaving surgery
March 8, 2012
Boston Children's patient Connor Marvin is featured.

EKG Testing May Spot Fatal Heart Conditions in Children
March 9, 2012
HealthDay News

Boston Children’s research is featured.

American Heart Association to recognize Dover doctor
April 3, 2012
The Dover-Sherborn Patch

Gerald Marx, MD, is featured.

Mass. student defies heart woes to enjoy baseball
April 22, 2012

The Boston Globe

18-year-old Boston Children’s patient Dylan Poulin is featured.

Heart disorder can't keep Deady off the diamond
May 31, 2012
The Andover Townsman
Boston Children’s patient Burton Deady is featured.

Tiny Robots Mend Broken Hearts
June 7, 2012

Technology Review and also reported by Mashable.
Work from Pedro del Nido, MD, and Pierre Dupont, PhD, is highlighted.

Study of the Day: An Incredible New Way to Breathe During an Emergency
June 28, 2012

The Atlantic 
also reported in Popular ScienceScientific AmericanTechnology ReviewThe ScientistFox NewsNatureThe Huffington PostInternational Business TimesSmart Planet, Daily Disruptionand Gizmodo.

Microparticles Deliver Oxygen
July 2, 2012

The Scientist
 and also reported by Fox News.
Research from John Kheir, MD, is featured

Business Journal to honor Champions in Health Care Aug. 23
July 18, 2014
The Boston Business Journal

 “Champions in Healthcare” are named, including Jean Anne Connor, DNSc, RN, CPNP, who directs nursing research in the cardiovascular and critical care programs.

“1 Family, 5 Heart Transplants”
July 19, 2012
Francis Fynn-Thompson, MD, is interviewed.

How a Viagra-like drug changed a little girl's life
July 26, 2012
WTVT (FOX Tampa)
Gerald Marx, MD, is interviewed about patient Elizabeth Jones.

Focus on Young Heart Patients' Development After Surgery
July 26, 2012
The Wall Street Journal
Jane Newburger, MD, MPH, is interviewed.

Krazy Days fundraiser to benefit Children’s Hospital patients
August 2, 2012
The Middleboro Gazette
Savanna's Bananas Heart Hero Team will be doing a fundraiser during ‘Krazy Days’ to raise money for Boston Children's Hospital Cardiac ICU patients and families.

Kids’ Cholesterol Down; Fewer Trans Fats Cited
August 7, 2012
Associated Press and also reported by Wall Street Journal (subscription required), ReutersFox NewsLos Angeles Times,Chicago TribuneThe Boston Globe and New York Daily News. Boston Children’s Sarah de Ferranti, MD, MPH, is interviewed.

Ventricular Assist Device May Offer Hope for Youngest Heart Patients
August 8, 2012
Christopher Almond, MD, and Cheryl Toole, RN, MS, discuss the study and patient Avery Toole’s story is included.

Injectable Oxygen
August 31, 2012
Technology Review

John Kheir, MD, research is featured.

Avery Toole, 8, Gets a Little Boy’s Heart, Bonding Their Families Forever
September 20, 2012
People Magazine
People Magazine’s “Heroes Among Us” features the story of Boston Children’s patient Avery Toole, who was diagnosed with hypoplastic left heart syndrome at one day old and who later received a heart transplant. The article tells of her journey as well as that of the organ donor, a little boy from Texas. Avery’s mom Cheryl Toole, RN, MS, speaks of the close bond the families have developed.


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