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A rare disorder changed South Carolina girl's life forever
March 20, 2015
Boston Children’s Hospital patient Kenslie Shealy’s hometown of Lexington County, SC, is holding a fundraiser for the youngster according to a news report on WIS-TV (NBC, South Carolina). The 2-year- suffering from Midaortic syndrome, a progressive narrowing of the abdominal aorta, was flown to Boston Children’s in February for specialized care.
Foligno seeks purpose, not sympathy
January 23, 2015
National Hockey League All-Star, Nick Foligno doesn’t often tell the entire story of just how close he and his wife came to losing their first child. They're not looking for sympathy. They tell it only because they're so passionate about the innovative surgery performed at Boston Children’s Hospital. ESPN chronicles the Foligno’s journey that brought them to Children’s and interviews Ram Emani, MD, the doctor they credit for saving the life of their new-born infant daughter.
Researchers Working To Perfect Injectable Oxygen
January 16, 2015
WBZ-TV reports on research by Boston Children’s John Kheir, MD, on micro-particles that can be injected directly into the bloodstream to quickly oxygenate your body, even if you are not breathing.
Dr. John Mayer: Children's heart surgery on all-island basis 'would work'
October 14, 2014
BBC Northern Ireland reports on Boston Children’s Heart Center surgeon, Dr. John Mayer, advising on the future of children's heart surgery in Northern Ireland.
Heart surgeon Pedro del Nido performs pint-size miracles saving children in womb
September 29, 2014
Fox News Latino reports on Dr. Pedro del Nido, a Boston Children’s Hospital heart surgeon who has changed the heart of surgery, giving thousands of children a chance of a normal childhood, or close, and a shot at a future.
Heading off the alarms at Boston Children’s Hospital
April 22, 2014
The Boston Globe reports that Boston Children’s Hospital has joined with a startup named Etiometry to develop a system that aims to forecast changes in a patient’s condition before the patient’s medical alarms go off.
For heart surgery a glue replaces needle and thread
January 9, 2014
The Boston Globe reports on a promising development in the treatment of cardiac surgery. Boston Children’s Hospital Pedro del Nido, MD, and Nora Lang, MD, along with researchers from Brigham and Women’s Hospital and MIT developed a surgical “super” glue that is nontoxic, biodegradable and fast-drying even in the presence of blood, forming a bond that is strong enough to close a hole in a beating heart. BBC, NPR, Philly.com, National Geographic, UPI, Fox News, The Huffington Post, The Scientist and MIT Technology Review also reported on this story.
Disabled baby denied heart transplant elsewhere, receives care at Boston Children’s
December 4, 2013
CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities. The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.” Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail , Fox News, The New York Post and Gawker.com.
Two organs, one life saved
March 11, 2013
The Lowell Sun tells the story of four year-old Sofia Groff, who received a unique transplant at Boston Children’s in 2010 to treat her extremely rare medical condition, known as mid-aortic syndrome. In a transplant surgery recently described in the American Journal of Transplantation, Sofia received a new aorta and kidney. This was the first case to be reported where a length of aorta has been transplanted with a kidney in a child.
Cape Teen’s Heart Pump Making Medical History Before Transplant
March 6, 2013
WBZ-TV Channel 4 tells the story of 13 year-old Kyah DeSimone, who is the first patient discharged from Boston Children’s Hospital with a ventricular assist device, and the first child to return to school in North America with the device while awaiting transplant.
Experimental surgery at Children’s Hospital gives girl life
March 26, 2013
WCVB-TV channel 5 profiled 9-year-old Boston Children's patient Alexa Rand, who was diagnosed in utero with hypoplastic left heart syndrome, a rare condition that causes a portion of the heart to under develop. Boston Children’s Frank Cecchin, MD, talks about the surgeries that saved her life and how well she is doing today.
Yarmouth girl alive, waiting for new heart, thanks to device
March 5, 2013
The Cape Cod Times features the story of 13 year-old Kyah DeSimone, who was the first patient discharged from Boston Children’s with a ventricular assist device (VAD) and the first patient to go back to school in North America with a VAD while waiting for a heart transplant. Boston Children’s Christina VanderPluym, MD, and Beth Millian, RN, BSN, describe the team effort to get this VAD for Kyah and then train those in her community about the device. WCVB-TV Channel 5 also covers Kyah’s remarkable story.
Working to End Heart Transplant Rejection
March 5, 2013
Boston Magazine reports that Boston Children’s David Briscoe, MB, BCh, is leading the efforts to better determine the warning signs of a chronic heart transplant rejection.
Boston teen carries artificial-heart battery inside her black purse while she waits for transplant
March 4, 2013
The New York Daily News reports that doctors at Boston Children’s Hospital have treated the first child who has been able to leave the hospital with a ventricular assist device (VAD). She carries the VAD in a small black purse, which lets her live a normal life outside of the hospital while waiting for a heart transplant. Boston Children’s Hospital’s Christina VanderPluym, MD, is quoted. The Daily Mail also reports on this story.
Teen Takes Artificial Heart to School as She Waits for Transplant
March 1, 2013
ABCNews.com tells the story of 13-year-old Boston Children’s patient Kyah DeSimone who was diagnosed with dilated cardiomyopathy at age 10. Until a new heart is available, Kyah has a portable, motorized pump in her heart, allowing her to return to school and live a normal life while she awaits transplant.
Heart Troubles Rare But Deadly in Young Athletes
February 28, 2013
ABC.com reports though relatively rare, a cardiac event that strikes a young athlete at practice or play is often deadly. About 100 young people die every year playing organized sports, and cardiac arrest is the cause in about half the cases. Boston Children’s Dominic Abrams, MD, provides perspective on the issue and offers prevention advice.
Stranger Saves Holyoke Boy… Now Active Life, with a New Heart
February 21, 2013
WGGB (ABC affiliate, Holyoke, Mass.) tells the story of 14 year-old Ardazan Dennis, who received a heart transplant at Boston Children’s Hospital when he was 10. Ardazan was born with a rare congenital heart defect and needed a transplant to save his life.
Children’s first cardio fetal intervention patient honored at Celtic game
February 19, 2013
The Ipswich Wicked Local reports that before Boston Children’s patient Jack Miller was born, an ultrasound revealed a blockage in his heart. Boston Children’s doctors performed a novel procedure, repairing Jack’s heart, then the size of a grape, while he was still in his mother’s womb. Thanks to this first-of-its-kind care, Miller was born perfectly healthy and remains healthy 11 years later
Wakefield Girl Gets Heart Transplant In Time For Valentine’s Day
February 14, 2013
WBZ-TV channel 4 reports that five-year-old Boston Children’s patient, Katy Murphy, struggled with a heart condition since birth and received a new heart just in time for Valentine’s Day. Boston Children’s Dr. Kevin Daly, MD, the is interviewed. WHDH-TV channel 7 also reports on the youngsters’ transplant.
Good news for heart transplant recipients
January 9, 2013
The Metro newspaper reports on new research from Boston Children’s Kevin Daly, MD, and David Briscoe, MD, who found a way to use a combination of three blood-borne proteins to possibly prevent chronic rejection of heart transplants.
Poker Pals raising money for baby’s life-saving surgery
January 3, 2013
WCVB-TV channel 5 reports on the fundraising efforts to get a 6-month-old Pakistani infant with a complex heart condition to Boston Children’s Hospital’s Cardiac Care Center. Medical experts from Pakistan and India were unable to provide the complex medical care the baby needed and contacted hospital, were Boston Children’s Sitaram Emani, MD, agreed to manage the infants care.
The future of medicine is now
January 2, 2013
The Wall Street Journal reports on six medical innovations that could change the way we fight disease,including Boston Children’s Hospital’s cardiology team’s treatment for hypoplastic left heart syndrome. Boston Children’s Sitaram Emani, MD, is interviewed.
E'town teen undergoes heart transplant
March 1, 2012
The Press Republican
Boston Children’s patient Connor Marvin is featured.
North Country teen recovering from lifesaving surgery
March 8, 2012
Boston Children's patient Connor Marvin is featured.
EKG Testing May Spot Fatal Heart Conditions in Children
March 9, 2012
Boston Children’s research is featured.
American Heart Association to recognize Dover doctor
April 3, 2012
The Dover-Sherborn Patch
Gerald Marx, MD, is featured.
Mass. student defies heart woes to enjoy baseball
April 22, 2012
The Boston Globe
18-year-old Boston Children’s patient Dylan Poulin is featured.
Heart disorder can't keep Deady off the diamond
May 31, 2012
The Andover Townsman
Boston Children’s patient Burton Deady is featured.
Tiny Robots Mend Broken Hearts
June 7, 2012
Technology Review and also reported by Mashable.
Work from Pedro del Nido, MD, and Pierre Dupont, PhD, is highlighted.
Study of the Day: An Incredible New Way to Breathe During an Emergency
June 28, 2012
The Atlantic also reported in Popular Science, Scientific American, Technology Review, The Scientist, Fox News, Nature, The Huffington Post, International Business Times, Smart Planet, Daily Disruption, and Gizmodo.
Microparticles Deliver Oxygen
July 2, 2012
The Scientist and also reported by Fox News.
Research from John Kheir, MD, is featured
Business Journal to honor Champions in Health Care Aug. 23
July 18, 2014
The Boston Business Journal
“Champions in Healthcare” are named, including Jean Anne Connor, DNSc, RN, CPNP, who directs nursing research in the cardiovascular and critical care programs.
“1 Family, 5 Heart Transplants”
July 19, 2012
Francis Fynn-Thompson, MD, is interviewed.
How a Viagra-like drug changed a little girl's life
July 26, 2012
WTVT (FOX Tampa)
Gerald Marx, MD, is interviewed about patient Elizabeth Jones.
Focus on Young Heart Patients' Development After Surgery
July 26, 2012
The Wall Street Journal
Jane Newburger, MD, MPH, is interviewed.
Krazy Days fundraiser to benefit Children’s Hospital patients
August 2, 2012
The Middleboro Gazette
Savanna's Bananas Heart Hero Team will be doing a fundraiser during ‘Krazy Days’ to raise money for Boston Children's Hospital Cardiac ICU patients and families.
Kids’ Cholesterol Down; Fewer Trans Fats Cited
August 7, 2012
Associated Press and also reported by Wall Street Journal (subscription required), Reuters, Fox News, Los Angeles Times,Chicago Tribune, The Boston Globe and New York Daily News. Boston Children’s Sarah de Ferranti, MD, MPH, is interviewed.
Ventricular Assist Device May Offer Hope for Youngest Heart Patients
August 8, 2012
Christopher Almond, MD, and Cheryl Toole, RN, MS, discuss the study and patient Avery Toole’s story is included.
August 31, 2012
John Kheir, MD, research is featured.
Avery Toole, 8, Gets a Little Boy’s Heart, Bonding Their Families Forever
September 20, 2012
People Magazine’s “Heroes Among Us” features the story of Boston Children’s patient Avery Toole, who was diagnosed with hypoplastic left heart syndrome at one day old and who later received a heart transplant. The article tells of her journey as well as that of the organ donor, a little boy from Texas. Avery’s mom Cheryl Toole, RN, MS, speaks of the close bond the families have developed.
Rebuilding a whole heart for children born with only half of one
November 6, 2012
Using a combination of surgical procedures developed over the last 11 years, surgeons at Boston Children's Hospital have established a new approach for rebuilding the heart in children born with a severe heart defect called hypoplastic left heart syndrome (HLHS). This "staged left ventricle recruitment" (SLVR) strategy uses the existing standard single-ventricle treatment for HLHS and additional procedures to spur the body's capacity for healing and growth and encourage the small left ventricle in these children to grow and function.
Boston Children’s surgeons pilot expandable prosthetic valves for children with congenital heart disease
October 2, 2012
Pedro J. del Nido, MD, and his team have successfully implanted a modified version of an expandable prosthetic heart valve in several children with mitral valve disease. Read more...
Tight Blood Sugar Control Won't Help Babies After Heart Surgery
September 7, 2012
Healthday News and also reported by MedPage Today
Michael Agus, MD, interviewed.
May 8, 2012
New robot successfully performs surgical closure in a beating heart
May 10, 2012
Building a drug-delivery platform to regenerate heart tissue
While current heart-attack treatments mainly try to preserve healthy heart tissue, scientists have been finding compounds that can stimulate growth of new tissue – either by getting heart muscle cells (cardiomyocytes) to replicate, or by stimulating other nearby cells to become cardiomyocytes. The challenge lies in getting these regenerative factors into the damaged heart tissue. Now, Bernhard Kuhn, MD, and team report success getting a sponge-like gel, soaked with one of these factors, to slowly release the medication into the space surrounding the heart, and from there into the damaged tissue.
August 23, 2012
Three Boston Children’s Hospital Clinicians Named “Champions in Health Care” by The Boston Business Journal
December 19, 2011
Targeting EETs to treat cardiovascular disease may prove a double-edged sword
September 25, 2011
A heart of gold: Better tissue repair after heart attack
May 17, 2011
Boston Children's Hospital Ranked #1 by U.S. News & World Report in More Specialties Than Any Other Children’s Hospital in the Nation
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Boston Children's Heart Center Alumni E-Newsletter. Read the Fall 2014 edition here.
Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
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