Disabled baby denied heart transplant
December 4, 2013
CNNHealth.com’s “The Empowered Patient” column profiles a family whose 5-month-old infant was denied a heart transplant at various other institutions before coming to Boston Children’s Hospital – reportedly because he had a disease they believed would leave him with mental and physical disabilities. The grateful mother said, “the difference between Boston and all the other hospitals is the way they cared…and that they cared.” Boston Children’s Amy Roberts, MD, is included in the story. The story was also reported by The Daily Mail , Fox News, The New York Post and Gawker.com.
Experimental surgery at Children’s Hospital gives girl life
March 26, 2013
WCVB-TV channel 5 profiled 9-year-old Boston Children's patient Alexa Rand, who was diagnosed in utero with hypoplastic left heart syndrome, a rare condition that causes a portion of the heart to under develop. Boston Children’s Frank Cecchin, MD, talks about the surgeries that saved her life and how well she is doing today.
Two organs, one life saved
March 11, 2013
The Lowell Sun tells the story of four year-old Sofia Groff, who received a unique transplant at Boston Children’s in 2010 to treat her extremely rare medical condition, known as mid-aortic syndrome. In a transplant surgery recently described in theAmerican Journal of Transplantation, Sofia received a new aorta and kidney. This was the first case to be reported where a length of aorta has been transplanted with a kidney in a child.
Cape Teen’s Heart Pump Making Medical History Before Transplant
March 6, 2013
WBZ-TV Channel 4 tells the story of 13 year-old Kyah DeSimone, who is the first patient discharged from Boston Children’s Hospital with a ventricular assist device, and the first child to return to school in North America with the device while awaiting transplant.
November 6, 2012
Rebuilding a whole heart for children born with only half of one
Using a combination of surgical procedures developed over the last 11 years, surgeons at Boston Children's Hospital have established a new approach for rebuilding the heart in children born with a severe heart defect called hypoplastic left heart syndrome (HLHS). This "staged left ventricle recruitment" (SLVR) strategy uses the existing standard single-ventricle treatment for HLHS and additional procedures to spur the body's capacity for healing and growth and encourage the small left ventricle in these children to grow and function.
October 2, 2012
Boston Children’s surgeons pilot expandable prosthetic valves for children with congenital heart disease
Pedro J. del Nido, MD, and his team have successfully implanted a modified version of an expandable prosthetic heart valve in several children with mitral valve disease. Read more...
September 7, 2012
Tight Blood Sugar Control Won't Help Babies After Heart Surgery
Healthday News and also reported by MedPage Today
Michael Agus, MD, interviewed.