A serious pediatric illness affects the entire family. From your very first visit to Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, you’ll find that we are committed to much more than just healing the patient’s condition; we support the entire family with emotional, financial, spiritual and clinical support services. And because our Center provides the full resources of both Dana-Farber and Boston Children's Hospital, you'll find we offer more support services and resources than almost any other cancer and blood disorders center.
Clinical Support Programs
Our clinical support services for survivorship, fertility preservation, palliative care, cancer risk assessment and psychosocial care address the more immediate patient needs that arise from a cancer and blood disorder diagnosis. With these services, we broaden the care beyond diagnosis and treatment to meet the patient and families’ medical, physical and emotional needs before, during, and after care.
Intellectual & Creative Nourishment
It's not uncommon for children to miss school while being treated for a serious illness – especially when lengthy inpatient stays are required. We offer creative activities, music therapy, educational resources and other ways for kids to have fun and continue their intellectual growth through treatment. We also arrange for social activities such as pizza and movie nights where patients and families can come together and enjoy the company of others who are dealing with similar challenges.
School Support Services
Our back-to-school support services – The Back to School Program and the School Laision Program – are designed to ease children’s transition back to the classroom. The goal of these programs is help our patients transition back to school by educating classmates, teachers and school administration through in-person counseling and routine school visits.
The patient and family resource centers at Boston Children's Hospital and Dana-Farber Cancer Institute provide comfortable places to learn and pass the time with other patients and families going through a similar experience. Each room offers computer stations, books, brochures, videos, and CDs to help you find the information and support you may need.
Emotional & Spiritual Support
We offer several services to help with the emotional and spiritual challenges, including a psychosocial program for psychological support; spiritual consultation from a variety of perspectives, including interfaith, Islamic, Jewish, Protestant and Roman Catholic faiths; and ethics consulting for families facing difficult decisions and choices regarding care.
Our online video resources answer common questions, explain conditions and treatments, share patient stories, and provide guidance on aspects of at-home care, including Caring for a Central Line at Home and Using a Nasogastric (NG) Tube to Provide Nutritional Support.
Patient and Family Advisory Council
The Pediatric Patient and Family Advisory Council (PPFAC) is a partnership of patients, family members, and professional caregivers, dedicated to improving hospital programs, policies, and the overall quality of cancer care provided to children, teens and their families both during and after treatment.
Visit the Dana-Farber/Boston Children’s website to learn more about our family and patient support services.