CDKL5 Clinic | Meet our Team

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Our CDKL5 Center of Excellence is led by neurologist Heather Olson, MD, in Boston Children’s Division of Epilepsy and Clinical Neurophysiology. Also on the faculty of Harvard Medical School, Dr. Olson previously trained at Mayo Medical School and completed residencies and fellowships at Harvard Medical School/Boston Children's. She has received the Infantile Spasms Award from the Child Neurology Foundation and has multiple publications in the field of epilepsy genetics. She also participates in Boston Children’s Epilepsy Genetics Program and Fetal-Neonatal Neurology Program, broadening her expertise in managing neurologic challenges in children with CDKL5 mutations.

The team also involves physicians from a variety of specialties including: Neurology, Neuro-Ophthalmology, Orthopedics, Gastroenterology, Feeding team, and Genetics.

Heather  Olson

Heather  Olson, MD, MS

Assistant in Neurology

Department: Neurology

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Kiran Prasad  Maski

Kiran Maski, MD, MPH

Sleep Clinics Director, Neurology

Department: Neurology

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David Urion MD

David K. Urion, M.D., FAAN

Associate in Neurology; Charles F. Barlow Chair in Neurology; Director of Education and Residency Training Programs in Clinical Neurology and Clinical Neurodevelopmental Disabilities; Director, Behavioral Neurology Clinics and Programs; Co-Chair, Ethics Advisory Committee

Department: Neurology

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Lindsay Swanson

Lindsay C. Swanson, MS, CGC

Project Manager & Licensed Genetic Counselor

Department: Neurology

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Gena Heidary

Gena Heidary, MD, PhD

Director of Neuro-Ophthalmology Service

Department: Ophthalmology

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Timothy Hresko MD

M. Timothy Hresko, MD

Orthopedic Surgeon

Department: Orthopedic Center

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Elana M. Bern, MD, MPH

Attending Physician

Department: Gastroenterology Hepatology Nutrition

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Jennifer Perez, MS, CCC-SLP

Jennifer Perez, MS, CCC-SLP

Clinical Coordinator, Feeding and Swallowing Program

Department: Otolaryngology and Communication Enhancement

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Kara Larson

Kara Larson

Department: Otolaryngology and Communication Enhancement

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Jonathan Picker

Jonathan Picker, MD, PhD

Assistant in Medicine Director, Fragile X Program

Department: Genetics and Genomics

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300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337