CDKL5 Clinic | Information for patients and families

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Contact the CDKL5 Clinic

  • 617-355-6388
  • International: +1-617-355-5209
  • Schedule An Appointment: Monday-Friday 7:00am-8:00pm

Resources at Boston Children’s CDKL5 center


External information and resources

The International Foundation for CDKL5 Research has a website full of information about the condition, research and family support.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944