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There are many ways you can help children and their families get the care they need.
You and your family play an essential role in your child’s treatment for cardiomyopathy. It’s important that you share your observations and ideas with your child’s treating physician, and that you have all the information you need to fully understand the treatment team’s explanations and recommendations. Family history is a vital component of evaluating patients with cardiomyopathy and gathering as much information as possible, including calling family members for more information before seeing your doctor, will help with the evaluation.
You’ve probably thought of many questions to ask about your child’s cardiomyopathy. It’s often very helpful to jot down your thoughts and questions ahead of time and bring them with you, along with a notebook, to your child’s appointment. That way, you will have all of your questions in front of you when you meet with your child’s treating clinician and can make notes to take home with you. (If your child is old enough, you can encourage him or her to write down questions, too.)
Initial questions to ask your doctor might include:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”