PACER Parent Advocacy Coalition for Educational Rights will fill in where the previous two sites may have left off.
Financial Resources
The Child Health Insurance Program (CHIP) is a partnership between state and federal goverments to provide health insurance for children from working families with incomes too high too qualify for Medicaid but to low to afford private coverage.
Health Hippo provides hundreds of links to policy and regulatory information related to health care.
Center for Medicare & Medicaid Services (CMS) is the federal agency which manages Medicare, Medicaid and Child Health Insurance programs. Click on the information clearinghouse section for a list of HCFA publications.
Social Security Administration online answers a lot of questions about benefits, who qualifies for benefits as well as local offices.
Department Of Regulatory Agencies – Contact your state department for any additional information. For example Colorado offers the following: www.dora.state.co.us, a great online brochure “What Happens When Your Health Insurance Says No”.
Family Voices Publication List “Managed Care for Children with SHCN” is a wonderful brochure explaining managed care as well as what kind of questions to ask about your insurance coverage.
Medical Information
National Medical Home Portal is one of the best organized sites with information on education about your child’s chronic condition.
Rare Genetic Diseases in Children A well organized site with links on financial, educational, and medical resources for children with genetic disease.