Children's Hospital Boston  300 Longwood Avenue
Boston, MA 02115
(617) 355-6000
 X
My Child Has:
Pierre Robin Sequence
What is Pierre Robin sequence?
Pierre Robin sequence is a combination of birth defects that usually include a small lower jaw, cleft palate and a tendency for the tongue to "ball up" in the back of the mouth.
What causes Pierre Robin sequence?
The precise cause is unknown. No known food, medication, or activity during pregnancy can cause Pierre Robin sequence.
What are the chances of having a child with Pierre Robin sequence?
Pierre Robin sequence is rare. Most cases are sporadic, meaning they occur once in a family, with a low chance of it occurring in another pregnancy.
What problems are associated with Pierre Robin sequence?
In addition to the physical characteristics common to the condition, children with Pierre Robin sequence may have the following problems:
  • Breathing problems
  • Feeding problems in infancy
  • Ear infections
  • Hearing loss
How is Pierre Robin sequence diagnosed?
Since a child is born with Pierre Robin sequence, it is usually diagnosed at birth by the physical signs.
How is Pierre Robin sequence treated?
Depending on the severity of the disorder, a child with Pierre Robin sequence may require some or all of the following surgeries:
  • Surgery to repair the cleft palate
  • Special devices to protect the airway and aid in feeding
  • Surgery to improve breathing (tongue-lip adhesion)
  • Surgery to improve feeding
 X
Programs related to this topic:
Craniofacial Anomalies Program
Bookmark and Share
 X
 X The information on this website should not be taken as medical advice,
which can only be given to you by your personal health care professional.
 X
 X Copyright © Children's Hospital Boston. All rights reserved.