Childen's Hospital Boston  300 Longwood Avenue
Boston, MA 02115
(617) 355-6000
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My Child Has:
Agenesis of the Lower Vagina
Programs that treat this condition
 Gynecology Program    Center for Congenital Anomalies of the Reproductive Tract  
 Gender Management Service (GeMS) Clinic  
A woman may be born with the absence of the lower vagina. This means that she may have a normal uterus, cervix and upper vagina but there is a blockage with the absence of the lower vagina (agenesis).

If there is agenesis of the lower vagina and there is a normal, functional upper vagina and uterus, than the upper vagina will fill with blood during menstruation. This can create a large pelvic mass which is the distended upper vagina.

It is Children's Hospital Boston's recommendation that a surgical procedure be performed when the upper vagina is filled with blood so that the upper vagina can be brought down to the area where a normal vaginal opening should occur. This is called a "pull-through vaginoplasty." A pull-through vaginoplasty will thus create a normal vagina. The tissue of the upper vagina which has been distended with blood has been expanded so that the upper vagina can now reach the lower vagina.

If this procedure is not performed when the upper vagina is filled with blood, than there may not be enough vaginal tissue to bring it down to the area of the hymeneal opening. If this is the case, then someone may need a procedure with the placement of a skin graft or section of bowel in order to create a normal length to the vagina. Once a normal vagina has been created a vaginal dilator may need to be worn in order to decrease the risk of circumpherential scar tissue formation. Once corrected, a woman with agenesis of the lower vagina should have normal reproductive function and fertility.

For more information go to the Center for Young Women's Health website.

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