Sturge-Weber syndrome

If your child has Sturge-Weber syndrome, it means that she was born with a vascular birthmark and neurological abnormalities.

• Seizures develop in 75 to 90 percent of all children with the syndrome. The seizures often start before a child reaches age 1 and may worsen as she gets older.
• About one-third of children with the syndrome have congenital (present at birth) glaucoma on the side with what’s called a port wine stain.
• The total number of people with SWS is not known, but estimates range from one in 40,000 to one in 400,000.

How Boston Children’s Hospital approaches Sturge-Weber syndrome

The Sturge-Weber Syndrome Clinic at Children's is a national leader in the care of children with Sturge-Weber syndrome, providing comprehensive evaluation and treatment services to children from birth to adulthood. Our team includes specialists in the fields of:

• Dermatology
• Neurology
• Neuropsychology
• Neurosurgery
• Ophthalmology
• Vascular Anomalies

We also work closely with your child's pediatrician to ensure that she receives individually tailored care that meets all of her needs.